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Country

FAQs

Liaison

Listserv

Organization

Website URL

Argentina Spanish Melisa Biman Yes AGA http://www.gistargentina.com.ar
Australia English Roy Neil No No No
Austria German Amy Bruno-Lindner Yes GIST Support Österreich  
Belgium Dutch and French Kris Heyman Yes Contactgroep GIST Nederland - België http://www.Contactgroepgist.be
Bolivia Spanish Vicky Ossio Yes No http://www.alianzagist.org
Brazil Portuguese Valeria Hartt Yes Alianza GIST

http://www.alianzagist.org

Bulgaria Bulgarian Juliana Popova No GIST Alliance for patients Bulgaria http://www.gist-bg.com
Canada English David Josephy No Life Raft Group Canada http://www.liferaftgroup.ca/

Chile

Spanish

Piga Fernández

Yes

GIST Chile

http://www.alianzagist.org

China

Chinese

ZeeZee Zhenxi Zhong

Yes

Shanghai Roots & Shoots

http://www.jgi-shanghai.org

Colombia Spanish

Maria Helena Matamala

Yes Fundación GIST Colombia http://www.fundaciongistcolombia.org/
Costa Rica Spanish Michael Josephy Yes No http://www.alianzagist.org
Cyprus Greek George Constantinou No No No
Czech Republic Czech Jana Pelouchová Yes

DIAGNÓZA CML o.s.
Patient society

http://www.diagnoza-cml.cz
Dominican Republic Spanish Alejandro Miranda Yes Un Paso Max http://unpasomax.wordpress.com/

Finland

Finnish

Marjo Väisänen

No

Finnish GIST Patient Network

http://www.syopapotilaat.fi/gist

France

French

Estelle LeCointe

Yes

Association Française des Patients du GIST

http://www.ensemblecontrelegist.com

Germany

German

Markus Wartenberg

Yes

Das Lebenshaus

http://www.DasLebenshaus.org

Greece Greek Lefteris Patapis No No No
Guatemala Spanish Silvia Castillo de Armas Yes ASOPALEU http://www.asopaleu.blogspot.com/
Honduras Spanish Xiomara Barrientos Yes No http://www.alianzagist.org
Hungary Hungarian Tünde Kazda No CML és GIST Betegek Egyesülete http://www.cmlgist.hu

India

Hindi

Raghu Nandanan

No

No

No

Iran

Farsi

Negar Amirfarhad

No

No

No

Ireland English Carol Jones No No No
Israel Hebrew Avi Zigdon No GIST Organization http://www.gist.org.il

Italy

Italian

Anna Costato

No

Associazione Italiana GIST

http://www.gistonline.it

Japan

Japanese

Sumito Nishidate

Yes

Japanese Study Group on GIST

http://www.gisters.info/

Jordan

Arabic

Mohammed M. Milhem

No

No

No

Kenya

English

Godsent Odero

No

Henzo Kenya

http://henzokenya.or.ke/website/
https://www.facebook.com/henzokenya

Korea Korean HyunJung Yang No Korean GIST Patients Group No
Lithuania Lithuanian TBD No No No
Macedonia Macedonian Dejan Krstevski No No No
Malaysia Malay Choo Sian Yong No No No

Mexico

Spanish

Rodrigo Salas

Yes

Fundación GIST México

http://www.fundaciongist.org

Namibia

English

Lon Garber

No

No

No

Netherlands

Dutch

Jack Asselbergs

Yes

Contactgroep GIST Nederland - België

http://www.contactgroepgist.nl
New Zealand English Joy Rycroft No No No
Nicaragua Spanish Maria Teresa Ponce No Alas de Vida http://www.alianzagist.org
Norway Norwegian Frode Homb No Sarkomer http://sarkomer.no/

Pakistan

Urdu

Muhammad Shahid Rafique

No

No

No

Peru

Spanish

Maurice Mayrides

Yes

Esperantra

http://www.esperantra.org/

Phillipines

Filipino

Rod Padua

Yes

Touched By Max

http://www.touchedbymax.weebly.com

Poland

Polish

Piotr Fonrobert

No

Polish GIST Society

http://www.gist.pl

Puerto Rico Spanish Eileen Rolon Yes No No
Romania Romanian Simona Ene No Asociatia Bolnavilor de Cancer No
Russia Russian Tanya Soldak No No No
Samoa Samoan Leasi John Galuvao No No No
Saudi Arabia Arabic Mohamed-Elbagir Ahmed No No No
Scotland English Stacey McAully No No No
Singapore Engish Kie Go No No No
South Africa English Annette Mentasti No No No
Spain Spanish Luis Herrero Yes

GIST España

http://www.gistespaña.es/

http://colectivogist.wordpress.com/

Sudan Arabic Mohamed-Elbagir Ahmed No No No

Switzerland

German
French
Italian

Helga Schnorf

No

Swiss GIST Patient's Group

http://www.gastrointestinale-stromatumoren.com

Thailand Thai Kittikhun Pornpakakul No No No
Turkey Turkish Haver Tanbay No No No

United Kingdom

English

Nicola Wardle

No

GIST Support UK

http://www.Gistsupportuk.com

Uruguay

Spanish

Fabrizio Martilotta

Yes

No

http://www.alianzagist.org

USA

English

Sara Rothschild

Yes

Life Raft Group

http://www.liferaftgroup.org

Venezuela

Spanish

Maria Isabel Gómez de Soriano

Yes

Asociación de Ayuda a Pacientes Hemato-oncológicos

http://www.asaphe.org.ve


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